Two months after a neurologist confirmed in March 2022 that the weakness in her left foot was amyotrophic lateral sclerosis, Brooke Eby started writing down the funny things that still happened to her. Those notes became TikTok videos within weeks, and within four years they had grown into one of the most closely followed public accounts anywhere of living with ALS. Eby, who pulled hundreds of thousands of strangers into a disease most of them had never thought about, died on October 1, 2026, at 37, the ALS Network announced.

Eby grew up in Potomac, Maryland, and graduated from Winston Churchill High School before earning a business information systems degree at Lehigh University in 2010, following her father and brother to the same school a generation apart. She went on to work in sales and partnership roles in New York and San Francisco, joining Salesforce in 2016.

The first sign of trouble came in 2018, when Eby, then 29, noticed she could no longer push off properly with her left foot and struggled to walk even a few blocks. The symptom spread and worsened for four years before a neurologist finally gave it a name, diagnosing ALS in March 2022, when she was 33.

Rather than retreat, Eby turned the diagnosis into content. Posting as @limpbroozkit, she narrated her progression from cane to walker to wheelchair, pairing each update with dry humor. "Levity is my superpower," she told Savannah Guthrie on the TODAY show in 2023. "It's really how I'm bringing my story to the world." One of her best-known clips showed her limboing beneath her own walker at a friend's wedding. The videos built an audience of more than 500,000 people across TikTok and Instagram, according to TODAY.

"I always say my North Star was giving a face to ALS," Eby said of the project, and she pushed researchers and institutions with the same directness she brought to her own diagnosis, challenging ALS stakeholders to operate, as she put it, "at the speed of ALS." The visibility became its own kind of advocacy work. Eby threw the ceremonial first pitch at a Baltimore Orioles game for ALS Awareness Night in June 2023, addressed roughly 70,000 Salesforce employees at the company's annual kickoff, and helped raise nearly a million dollars for ALS research, according to Lehigh University, her alma mater.

In 2023 she founded ALStogether, an online peer community built on Slack where people living with ALS and their caregivers could trade practical advice rather than only encouragement. It grew to more than 1,700 members, and in 2026 it was folded formally into the ALS Network. "Brooke changed the way people see ALS," Sheri Strahl, the ALS Network's president and CEO, said after Eby's death, "but she also changed the way people living with ALS find and support one another."

Eby also spent about a year developing the B.E. Collection, a line of adaptive clothing she designed with Silverts for people who found most adaptive wear too clinical. It launched July 29, 2025, with open-back tops, t-shirt dresses, bib scarves, a sherpa shawl and a terry cloth bath cape in a vintage cherry print, sized S through 3XL, machine washable and dryer friendly, with a portion of every sale going to Team Gleason. "Adaptive pieces shouldn't feel dull or medical," said Josh Norris, Silverts' president and CEO, "and there's a real need in the market to make exciting pieces that work for more body types and stages of disease/disability." Eby put it in her own terms: "Living with ALS, I've progressed from self-dressing to fully assisted dressing, and I hope this collection addresses the many-layered needs of those with disabilities."

That recognition came in 2026, when the ALS Network named her recipient of its Dean and Kathleen Rasmussen Advocate of the Year Award, formally presented that June at its Champions for Cures and Care gala in San Francisco. "I didn't choose ALS, but I did choose to get loud, and be irreverent about it," Eby said, "so don't worry, I'm not getting quiet anytime soon."

She had already explained why she kept filming in a personal essay for PEOPLE the previous January. "I have ALS at a relatable age," she wrote. "I could be someone's daughter, sister, mom, girlfriend, wife. I think people see me and it's a little more real." Of the archive she was leaving behind, she wrote plainly: "My TikTok presence will live on after I die. I hope it serves as a visual diary for anyone who gets diagnosed and needs a guide."

What Eby put in place is unusually concrete for someone who spent her public life online. ALStogether continues inside the ALS Network, still connecting newly diagnosed patients with people further down the same road. The B.E. Collection remains for sale, still funding Team Gleason. And the videos she started filming two months after her diagnosis, hundreds of them, from the first cane to the last wheelchair, remain posted under @limpbroozkit: an ALS primer written by someone who was living it, one honest update at a time.